AJOT CE: Quality of Life Perspectives of People With Amyotrophic Lateral Sclerosis and Their Caregivers
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Type: Download
Type: Download
Publisher: AOTA Continuing Education
Published: 2017
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Product Overview

Earn CE Credit With AJOT Articles!

Learn about tested treatment strategies by reading AJOT articles in your area of practice. Become an evidence-based practitioner and demonstrate your knowledge by passing the course exam.  Articles have been selected for their relevance to practice, fresh ideas, and strong evidence supporting treatment and the distinct value of OT.

Earn .1 AOTA CEU (1.25 NBCOT PDU/1 contact hour)




Stephanie Johnson, MHS, OTR/L, is Assistant Professor, Department of Occupational Therapy, College of Allied Health Sciences, Augusta University, Augusta; Bryant Alonso, OTR/L, is Occupational Therapist, Valdosta Pediatric Therapy Services, Valdosta, GA.



This study explored differences in perspectives on quality of life (QOL) between people affected by amyotrophic lateral sclerosis (ALS) and their caregivers. QOL is often thought of as related to physical limitations, without consideration of other factors (e.g., cognitive, emotional) that may be stronger predictors of QOL in people with long-term degenerative diseases. Because QOL is complex and influenced by multiple factors, people with ALS and their caregivers may have different perspectives on what constitutes QOL. This study investigated potential discrepancies in QOL perspectives between people with ALS and their caregivers. Thirty dyads from the Augusta University Health ALS Clinic completed a measure of QOL, and we compared the results and identified patterns. The most prominent finding was that members of the dyads misunderstood the mental experiences of one another.


Learning Objectives

1.      Explain positive and negative effects of the caregiving role for caregivers of individuals with amyotrophic lateral sclerosis (ALS)

2.      Discuss the differences in perspectives on quality of life between people with ALS and their caregivers

3.      Describe areas of communication that occupational therapy practitioners can enhance between persons with ALS and their caregivers to help improve their quality of life

Learning Level: Intermediate


Target Audience: Occupational therapists and occupational therapy assistants


Content Focus: Category 1: Domain of OT; Category 2: OT Process: Intervention